either but not a chore.
Watching Dad slowly, and sometimes quickly, moving into the shape of
his future life is interesting, but not in a disinterested sort of
way, more the "hope the train doesn't crash" sort of way. He is one
tough, tender, quiet, sometimes moved to tears, husband and father.
And my friend.
Mom is more the solo wheel chair races in the hallway kind of person
now. She has her slick little wheel chair and up and down her hall
she goes. But mostly alone. Her chair has a pole on the back that
hits the top of the door jamb at the fire doors junction in her hall,
stopping her from moving out into the nurses station, lobby area
where there is so much traffic and all the parked chairs of the
patients who have quit racing but can still get upset if any racing
chairs get too close.
I walked down the hall to see Mom and she surprised me by looking up
from her chair and saying, "Hi Craig, I have not seen you in so
long..." Well that was interesting. The next aide who walked by was
told, "look, this is my son Craig, he has come to visit me, he has
never come before but he is here now." Truly interesting.
After all the visits when Mom has been distant, lost, quiet, rolls
away, can't focus, this was interesting and it lasted for about 10
minutes. I drug a chair out of her room and we sat in the hall
together for over half an hour. I did not lock her chair wheel, her
life has devolved to the point that she can not figure out a wheel
lock on one wheel, instead she stayed awhile, drifted off, came back
and when I got up to go, she said, no, please don't go, stay with me.
And that is a bit hard to handle.
The medical reports are in as I mentioned recently. She again is
confirmed with vasculitis, Wegener's Granularmatosis, with vascular
eruptions on the calf of one leg and non-stage specified kidney
disease. Her breathing has improved, the choking feeling she has
struggled with is not active now and she is eating well and
maintaining her weight.
What a life.
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