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Friday, October 26, 2007

Musings on a visit


Jerry, 

You are such a blessing. Your visiting means a lot to me and I know it does to Dad also. I am flying to Nashville next week to see my brothers and then drive back across the country with Dad. Should be an interesting week. Should be a good week. Dad and I have talked of taking a road trip together and this should do it. 

My son Mark and I visited Mom today. It was the first time he had seen her in probably three months and she did not recognize him or acknowledge him at all. She only recognized me in the briefly teary generic way that she has. She was absolutely flat with no remarks, no connection. She was not able connect with me, so after I unlocked her chair, she just drove off. Came back once, still no connection so off she went with staff to supper. 

Strangely disappointing, as if some other outcome was expected. 

I spoke with my young (thirty something) second cousin on my father's side yesterday. She was speaking of her grandmother and telling me how she visits grandma every day and every day engages her even though "she is usually gone". She went on to say "I will not give up, I have complete hope and faith.....". I asked her, faith that what? A miracle will happen? We know how these things end, there is no mystery here, we know the end of the story. And she said, "no, I will not give up." 

And I am happy for her. 

Craig


 
Sally and I stopped in to see Marjorie yesterday.  She's pretty much exactly as you have described but did start with a bit of a surprising event.  She saw me, called me by name (Gerald) held my hands and just sobbed and sobbed.  Later to a slightly lessor extent she did the same with Sally (she didn't call her name) but when I asked her if she knew her, Marjorie replied "of course I do".
 
But it doesn't take long for her to begin her sad incomprehensible ramblings.  We hadn't been there long when she just turned around and was wheeling way.  I went and "got her" and brought her back to the two chairs Sally and I were sitting in and she seemed pleased to see us again.
 
Several of the nurses/aides etc. came over and said what a joy Marjorie was and she gave them a hug or a squeeze.  I talked to one of the nurses and she commented that your Mom sure hadn't forgotten her "religious training" (although that did not come up yesterday with us in any way that I could understand).  She asked/talked about her parents a couple of times and I told her "they were gone".  Marjorie also remembered working for "Auntie Eva" and others (this came up when talking to some of the staff).
 
We must have hung around for up to an hour...she would "cruise off", I'd bring her back and we'd "talk".  A couple of times she made complete sense...I mentioned that I was in communication with you and she said "he's a good boy".  I also mentioned being in touch with Janet and Lester and she said "they lost their son...just terrible". But then she would go off muttering something totally incoherent to us.
 
What else is there to say...Sally and I left simply saying to each other, please don't let that happen to us.  (Of course, how does one prevent that?!).
 
Anyway, wanted you to know.  You, Allen and all involved have our sympathy.  And we feel so sorry for your mom.
 
Jerry




Tuesday, October 16, 2007

It has been a very long time

And what is there to say. Day turns into night and night into day and
there is no good news. There is actually no news at all but there is
certainly no good news. Acknowledging that there will never be good
news does not in any way lesson the questions and view of the future.

Visiting Mom is an internal chore that brings along with it feelings
of some guilt and uncertainty. What happens next, what is the
appropriate visitation level, what is the the point of the visit at
all. Damn it all, it all sounds so selfish and absorbed.

Mom, rolls up and down the halls, crying, praying, asking for Jesus,
confused, lost, hopeless and forlorn. To visit is to tear away again
after no recognition. What is the point, to assuage me? To comfort her?

She is stable in that indeterminate stability that can last for
months and months and if there is any internal awareness must be
dreadful for her. But oh, she knows little and often not her own
name, where is the pain?

The pain is there, inconsolable, but there, fixable, not, but there.

God rest her.